I cured my endometriosis reddit However I've stopped my period with my last gyno and he said that if the pain is still bad i'll have to do a laparoscopy. It’s most likely bc after my lap I reduced to 5mg instead of 10mg. The pain became gradually unbearable. I’m very anti-BC, ask your doctor about alternatives too. I can share my plans, but I’d While getting an endometriosis diagnosis can offer some measure of relief, it also means finding out there’s currently no proven cure for your symptoms. have to just remind myself that she’s just being concerned and it’s tough dealing with something that My gyno said there’s a possibility i have endometriosis (if it’s not hormonal which we’re doing 2 more blood tests to check) and that the first and only treatment besides surgery is birth control. definitely talk with a doctor and seek out referral for pelvic floor physical therapy. It doesn't make sense to only treat seretonin if the problem is with my hormones 😑 I also may have endometriosis as I just found out both my grandmother and aunt had it quite severely. Or check it out in the app stores   Nonetheless, as of writing this, I have effectively "cured" my sleep apnea and I'm no longer in need of my bipap. I can feel places that are stuck together. Stage 4 endometriosis. Or check it out in the app stores   Unfortunately Endo can't be cured, so whatever they take out by excision or ablation can still grow back or have new spots. My go-to flare items are: Netflix or other streaming service for distractions, my plushie that my younger sister gave me (for moral The good news is I had my tubal ligation yesterday. aside from jump to content. My AMH was borderline, HSG was clear, and infertility I’ve gotten an excision and hysterectomy done in 2020. Which comes with It helped a bit, but about 4 months after my hysterectomy, I started to regrow some adhesions. The vast majority of our users are endo patients and this is predominantly a So for me, no, at no point post surgery do I consider myself cured and without endo. Castor oil packs have been shown to help with detoxification. Don’t lose sight of the person you fell for. I went ignored and undiagnosed for 25 years, so when I was finally diagnosed a few years ago, my Mom was full on in “Mama Bear advocate, badass, don’t Fuck with my daughter, I’m going to learn all I can about Endometriosis because you are always going to be my baby girl” mode. 5 years in complete remission from endometriosis symptoms (my gyno is the one who diagnosed me) because I regularly took My doctor said it is a good one for endometriosis. We Only issue is my periods have gone back to random timing, extreme pain the two days before The Red and heaaaavy flow the first two days. I believe I have Endometriosis since I get severe cramps during my period where I vomit every month and recently I noticed it’s been bile I’m vomiting. I also did yoga religiously every single day, I stretched, and by the time I was 31 years old I taught myself how to do the splits. I’ve also had two subsequent surgeries to remove additional This community aims to support all people affected by and interested in endometriosis. they would have already f***ing cured it. its been 2 and a Try CBD products if you feel comfortable. Something Ah omg yes. View community ranking In the Top 5% of largest communities on Reddit. say this a treatment or cure most likely but I as a private citizen can get all excited and recommend it to people on reddit. I had a surgery with ablation four years previous with my regular ob/gyn (where I got my initial endo diagnosis) and at the time was told that took care of it. My gyno said the same thing and yet I am 1. But my process hasn’t cured my ADD or major anxiety or turned me into Superman, so maybe there’s something I’m missing out on. The vast majority of our users are endo patients and this is predominantly a Endometriosis is a disorder affecting female reproductive organs, where cells that resemble the uterus lining, called endometrial cells, grow outside the uterus. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and concerns, ask questions, and share 21 votes, 24 comments. Get the Reddit app Scan this QR code to download the app now. seconding baclofen and pelvic PT, they help so much with the pain. I c Get the Reddit app Scan this QR code to download the app now. Or check it out in the app stores Cured endometriosis pain in seconds . this 1. She mentions that her doctor “got the root” of endometriosis out during her lap. Sounds a lot like the Orilissa medicine you take. 2. I missed over 60 days of school in freshman year of high school because of the pain. Reply My endometriosis is centered in the lower intestinal/rectal region and basically feels like getting stabbed with a dagger in the butt. Literally the first time I was seen in his office he diagnosed me with possible endometriosis, that we both agreed he'd probably find with a surgery, that I wasn't yet willing to undergo. The hysterectomy did basically nothing for my endometriosis pain. i was dealing with moving, abuse, family issues, etc. To be fair, though, she was never touted as an endo specialist. -I would like my cyst removed because pain is energy-draining long-term. for a long time. i’m sure there are thousands or even millions of people with undiagnosed & untreated endometriosis thinking their suffering is normal. Over the last 5-6 months, my periods have started to become excruciatingly painful again in the way that they were before I had my operation, when my endometriosis flares up, it also causes me a lot of pain when I’m constipated sometimes and going for number 2’s. My periods used to be insanely heavy and After ten-ish years of strict elimination of my trigger FODMAPs, medical management of my endometriosis, and therapy/drugs for my depression, I've found that I'm in a much better place I'm in college now and I wear a hoodie all the time. an important thing to note is that hysterectomy *does not* cure endo. say this a treatment or cure most likely but I as a Endometriosis is an often undiagnosed problem that affects 10 to 15% of women. When changing birth controls how often would you change them. One thing I have learned from my gp is that there is a real elevation of risk for heart disease for people with endometriosis. I have the unfortunate experience of experiencing more pain when I get high. Many others suggested Ondansetron aka Zofran, I take that and it’s been a My situation is a bit different because I’m 3 months postpartum, but my first “period” after baby lasted 40 days straight. They affect when I schedule a night out with friends, when I schedule my vacations, and when I plan events. I've had excision surgery and that cured my pain for years, and now have some sort of cyst and a polyp. A urologist fixed my ureter during that surgery tooand my kidney thankfully recovered. Even though my pain/bleeding is NOT CONSTANT, I still would like a resolution. I don’t eat meat and have been making a lot of stuff myself (though try simple things As long as vaginal ultrasound and pap. I’m getting surgery for this in 3 weeks so relief will come soon, but this info is So this is my first post on reddit. in case you need to hear it, you have the power to escape your circumstances or go after the happiness you deserve and I(24F) was diagnosed with stage 4 endometriosis and had my excision lap 40 days ago. Sometimes it’s hard to separate out the pain. One miscarriage before him. You are correct, having this surgery does not cure endometriosis or prevent it from progressing. It was with a slightly better Dr. Endometriosis specialist will tell you going gluten and eating organic is best for endometriosis and that’s because studies have shown gluten and pesticides thrive on inflammation and gluten makes Endo brain fog worse. I have since gone to an I have a six year old son. And that’s when she told me. Deep endometriosis means that tisdue of organs are involved. A hysterectomy may provide symptom relief for many because it allows more space for other organs to move with the inflammation that The mass was off my left ovary and invaded my whole abdomen. Unfortunately, the intensity of the diet combined with personal circumstances just sent my stress levels through the roof, and my pain only escalated. Or check it out in the app stores   I have cured my chronic rhinosinusitis! upvotes · comments. However, it does Some is linking endometriosis as a maybe for autoimmune disease and can lead to other autoimmune diseases. I have no known health issues other than sciatica and endometriosis. I was up and walking sooner than I thought and resting at my dad's before I knew it. since my mother and grandmother had a history of uterine and ovarian problems, my grandmother needing a hysterectomy at 30 and my mom an ovarian removal at 35, they didn't think I would be able to have kids. Even with an incredibly skilled Endometriosis is associated with a broad range of symptoms including dysmenorrhoea (menstrual pain) ,dyspareunia (pain during intercourse), chronic intermenstrual pelvic pain, and Infertility. ” She has a few endo Cancer doctors, in my experience, shy away from using the term “cured” because to the general population cured means it’s 100% gone and not coming back. Never hesitate to get a second This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. Please remember there is no cure for endometriosis, but lots of pain/symptom management options out there so I’m glad you’re on the front of being educated because there are SO many people who just say “I cured my endo! Now pay me for my nutrition plan. I've been through 3 surgeries so far. The way it was explained to me was a bit confusing but I've seen it explained similarly to other folks and Endometriosis. I’m very interested in continuing this med for pain management purposes. I’d say it’s usually like 3-4 pimps a month but nothing like what I use to experience. I’m mad at all the doctors that passed my pain off as “normal”, I’m mad at the insurance companies for running the biggest bullshit scam on the whole planet, I’m mad at the lack of education on endo for puberty age kids, I’m mad at my job for rolling their eyes at me for crying over “cramps”, I’m mad at myself for I actually ended up losing a kidney due to endometriosis blocking my ureter. reReddit: Top posts of October 16, 2018. You are never too young to receive proper medical care. edit Yes. I was in pain, and very depressed, and feeling There is some promising research going on for less invasive diagnosis options, non-hormonal treatments, and possible cures. Sure it gave me other problems (like extra body hair, the inevitability of balding, and a higher risk factor for prostate cancer) but Even though my pain/bleeding is NOT CYCLICAL, I still would like resolution. The Real Housewives of Atlanta The Bachelor Sister Wives 90 Day Fiance Wife Swap The Amazing Race Australia Married at First Sight The Real Housewives of Dallas My 600-lb Life Last Week Tonight with John Oliver After menopause, the symptoms related to your cyclus become less, yet not with all people. I have less pain and a more normal flow. I’m changing my eating habits to avoid endo pain. I was suffering from floaters for past 8-9 months and they were on my nerves , I was thinking my life is nearly over and was searching for cure like a mad This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. You are not “too young” to have endometriosis. But Jessica Rafferty would often have to cut outings short due to crippling pain. The only rub is that you can’t take Lysteda AND BC. A cure would mean that the disease can be eliminated from the body and no further actions are required. My endometriosis is also quite severe and can cause pain during sex. Many women require more than one surgery, endo does reoccur/grow back, we are young in our They were able to find endometriosis! I’m 33. Endometriosis lesions can be removed surgically, or a woman can undergo a total hysterectomy in attempts to remove To cut the story short, the doctor prepared a “cure” using roots and herbs, which I steadily took for 18 days. I wasn’t surprised, I knew something had changed as This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. She, like one in 10 women, lives Ok so I, 22F live I'm French (idk if it helps with the story but anyway). The point is lifestyle changes can help but simply stating I cured my anxiety with lifestyle changes doesn't really take into account the fact that many people cannot do that. ” I actually ended up losing a kidney due to endometriosis blocking my ureter. No pain" while I was suffering still. Or check it out in the app stores   Wish there was a cure to this or a way we couldve all prevented this! my endometriosis has returned only 8 months post 5 hour My doctor said it is a good one for endometriosis. ) I have ovarian remnant syndrome. I got my endometriosis diagnosis. The only difference was the bites of food I had Christmas day. My bladder is adhered to my abdominal wall, and when I turn certain ways, it makes me almost pee my pants. The damage is done. This turned out to be incorrect 53K subscribers in the endometriosis community. It's a good idea to pair a hysterectomy with treatment by someone who knows what they're doing - I had my endometriosis excised by a specialist in gynecologic surgery. s are ok it's fine. 8 is not an acceptable number. I have tried meditation, relaxation, multiple exercises : wrist flexion and extension, Hammer grip radial deviation, Pronation/supination, Standing two arm band external rotation with scapular retraction, Finger/hand mobility and strengthening + novel movements. He found my bladder adhered to my abdominal wall again, but also discovered that I had Endometriosis scare tissue distorting my left ureter and putting it in harm's way. Luckily I did my research and know that it's something I will have forever. It can be difficult to manage I had a much different experience and really don’t like when people parrot this misinformation. Yes! I was diagnosed with PCOS before I was diagnosed with endo. My Mom is still the ONLY person in my life Other then that, supplements and gluten free and all that shit I feel IMO doesn’t do much of anything. Business, Economics, and Finance. More than when I was low carb. It’s definitely different. 1. However, my doctor has told me that if I work hard enough, it I went to doctor after doctor for 3 years and no one could tell me anything except that it was probably Vulvodynia, for which there is no cure. Leaving raw meat out like hides and guts to "cure" (dry out) does not "cook" the meat . But I don't go around telling every person with endo to evict their uterus and ovaries; because I know that there is no one-size-fits-all approach to treating endo. Low magnesium. The reason we don’t say we’ve cured HIV is because people with HIV still have to be medicated etc. Just saw this on ask reddit, seems like a pretty easy Well about 4 month after that surgery, my pain got worse. it’s on the YouTube profile “Lauren Norris” and the video “I Have Endometriosis | My Story. my history/symptoms: I have chronical menoragy since 22 years but they found that 6 years ago. There probably will never be a cure and especially When my doctor says the best way to cure my endometriosis is to have a baby. I haven't had really bad Endo symptoms in about a year, last time I had a panic attack from the pain and went to the hospital where I received oxygen and that thing pregnant ladies get i’ve had to just take really deep breaths when talking to my mum about endo - any time I have a flare up it’s a new miracle cure suggestion, or story from a friend of a friend of a friend who switched to an all fat no carb diet and is now cured and has perfect skin and grew 6 inches. My painful and heavy (liver like peaces of endometrium, blood cloths, blood gushing for days) period is prob. Was hospitalized on I have fibro and my SD is for balance & walking. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and View community ranking In the Top 5% of largest communities on Reddit. Unfortunately, like everyone else has said, research has been I have a laparoscopy in a few weeks bc of endometriosis and i can go home on the same day if there are no complications (hopefully). I use mine daily. Other then that, supplements and gluten free and all that shit I feel IMO doesn’t do much of anything. My hormones were also testing normal and no exam showed a reason There is currently no cure for Endometriosis. Did you know women with endo have lower levels of magnesium? guess what gives you worse cramps and horrible Charlie horses. Looking at my post history, you’ll know that I tried to commit suicide, because the Slightly off subject but related to migraine cures- I passed on having another drink at a bar once because I was afraid of triggering a migraine and this lady tells me that “ I don’t get migraines It is so amazing that your are looking for information to help support the girl you are dating. Sorry to get on here and vent but i feel like if men suffered from endometriosis. Your doctor is correct that a hyster doesn't cure endometriosis (although I'm not sure where he got the info that removing your ovaries too will cure it - that isn't correct, as endo can surface in many places that aren't the reproductive area - e. Locked I hate this disease too, it took 22 years for me to get diagnosed. +1 on avoiding doom scrolling - I get my news in podcast form in the morning, and occasionally checking the Reddit news tab, but no more than a few minutes a day. Many of them did't even believe me. Which was possible because my the pathology from my first oophorectomy did not suggest they found an ovary in the tissue that was sent to them. Or check it out in the app stores   This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. Crypto Having my electrolyte levels checked. Hi there!! I'm 24 and currently eleven weeks post-hysterectomy. I've begged my doctors to try for an endometriosis test but they don't even bother. That will make it so much easier to make sure they get the help they need as soon as possible This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. Hey everyone, I have fibroids and suspected endometriosis. I wish I had gone to see a gynecologist first and got my hormones checked before starting an SSRI. Some treatments can help your symptoms and spread - birth control, laparoscopy or ablation, and other medications We would like to show you a description here but the site won’t allow us. My endo was controlled for a year and a half but it’s now back and I have a very painful endometrioma as so my gyno scheduled an appt for me with a specialist to start discussing surgical plans for my endo next monday. -I have pelvic floor pain and vaginismus There is no known permanent cure for endometriosis. Success Story Another success story! I have endometriosis (I just realized my beliefs on this lol, I’m getting rid of it) and it can be extremely painful. This community aims to support all people affected by and interested in endometriosis. While there may not be a cure, there are treatment options and without the diagnosis, providers may be hesitant to try You guys, I don’t know how much more I can take. From my initial diagnosis at 24, my well-meaning doctor made sure I understood. This is not dangerous, remember people think for themselves and I am not telling The spread was so bad and everywhere (even my lung!) that a hysterectomy would never help me either. Every endo book I read reiterated the same. Reply reply This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. I’m mad. -I would like my cyst removed Being born with XY chromosomes really cured my endometriosis. The vast majority of our users are endo patients and this is predominantly a space designed for them, but we also welcome those who want to find out more about endometriosis or related conditions. I am in the process of getting a new doctor that will listen to me. The vast majority of our users To me my endometriosis pain seems to mimic the overall life stress I am experiencing in terms of not caring sufficiently for my physical body or emotional needs. i posted a similar question and it has some good answers from others if you want to check out my post history. I’d I have always struggled with intense pain and heavy bleeding since I started my period around age 11. However, surgery cannot remove all endo, and there is not a cure. But my intestines were flat as a piece of paper, I was living on miralax (ER orders). I put it away. We will find out! Kidney stone pain is evil because it’s so violently strong. Mass was benign. I was also having a new awful pain that would start right after having My previous gynecologist told me that she “cured” my endometriosis when she didn’t even excise all of it. My periods in the months before that were relatively pain free and a tolerable 5-7 days long. I stopped eating gluten, soy, red meat, dairy and sugar. My midwife had my levels tested with my last pregnancy and personally walked me over to get an infusion of magnesium, apparently . 1 What happens with endometriosis is that the cells similar to the endometrium, or uterine lining, This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. If your symptoms are acting up and you need relief, heat may help. I've known for a long time that I might have endometriosis. My boys kindly gave me some low carb, GF dark choc almonds. My Girlfriend has Endometriosis It takes a lot to be the partner of someone with Endometriosis-at least to be my partner. 5 years after my laparoscopy to prevent endometriosis growths and it actually did that. When double checking to ask what my surgeon mean (because as I understand there is no cure) he said “we don’t believe endometriosis grows back on its own, maybe if there are some microscopic lesions that are missed they will grow and cause problems after years, but we don’t believe endometriosis grows back after excision. Jesus. I also want to add that vitex chaste Will a hysterectomy cure endometriosis? A hysterectomy can alleviate symptoms of endometriosis by removing the uterus, where endometrial tissue can grow. I usually massage about a TBSP onto my abdomen and over my liver 3-6 nights a week then put on an My mom has endometriosis and is frequently sick with respiratory infections and is about to get tested for an immune deficiency too. After my failed FET last Monday, my doc suggested me to go for endometriosis surgery to see if they find anything. Even with an incredibly skilled excision doctor, they will never remove all of the rouge endometrial tissue and as long as your body is producing estrogen, it will continue to grow. Ever since I got my period (11/12), my health has started to decline. HUMOR Then simply click on your username on Reddit, go to the comments tab, scroll down as far as Taking the dog for a walk is a routine task for most people. Worst yet. Heavy and clotty, but manageable. Endometriosis does not “fade away” or magically get cured when you turn 18 or 21 or whatever age isn’t considered “too young”. my subreddits. It Yes that was one of my concerns as well! I’ve struggled with really bad acne since I got my cycle so they put me on LoLo, but I get less acne with norethindrone than when I had the mirena. That eating an absurd amount of turmeric every day would make my endometriosis not painful anymore and completely cure my IBD said to me by a pharmacy Chronic pain from endometriosis caused a tightening of my pelvic floor, surgeries caused adhesions, chronic inflammation caused more swelling and damage, and advancing The mri detected deep endometriosis and adenomyosis. I stopped my pilates classes because I needed to leave the session three times during the hour, and I couldn't do the exercises anymore owing to the abdominal pain. That's the last time I saw that gyno and I will never see a male gyno again because of him. Upon hearing that Currently, there is no definitive cure that exists for endometriosis. Or check it out in the app stores This community aims to support all people affected by and interested in endometriosis. I can’t even process how a doctor could inform a patient so wrongly. Those two pills together have completely changed my life for the better. My hysterectomy and bilateral oophorectomy actually cured much of my endo-induced pain. 5-2 year period was the worst time of my life with external stressors and the worst my UTI’s were. I'm going on 20 years of awful cramps, ever since I was a preteen. It is still raw and will give food poisoning the The only way to remove endometriosis is to cut it all out, using excision. I’m quite glad I went for that visit, because I am totally cured from Progesterone is a good alternative to BC. if they found any abnormal tissue, then the plan is my clinic will go ahead with letrozole and lupron cycle for couple of months I have asked my doc if endometriosis can be permanently cured? And she said NO. I However, to my pleasant surprise, my last two cycles have been great! Minimal pain that’s all managed with Minimal OTC pain support. I had endometriosis all over my body when they opened me up. Endometriosis doesn’t have a cure unfortunately. It took I have been trying to heal from chronic tendinopathy for years now and my opinion is that it cant be cured. i don’t think that’s a coincidence at all. I was actually pain free on Heating pads/blankets are my life. there is no cure for endometriosis but if it’s progressed enough, you can have a laparoscopic surgery where your surgeon removes endometrial tissue that’s not where it’s View community ranking In the Top 5% of largest communities on Reddit. My pain is specific to my pelvic area and some abdominal pain If your partner suspects endometriosis or a similar illness that takes usually years to diagnose then I'd recommend they do a lot of research on the suspected illness, family history, etc. Almost a year after that first surgery, I had my second this past summer. Her sister and mother also have a history of frequent This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. I also have an IUD to help In my case he used a laser to burn the endometriosis off of my right ovary and ureter. Specialists make a big difference. when my first one was inserted i had the worst cramps and pain for at least three months - but i had also had an abortion at the time they inserted it so it could’ve Yes that was one of my concerns as well! I’ve struggled with really bad acne since I got my cycle so they put me on LoLo, but I get less acne with norethindrone than when I had the mirena. Since my surgery, I had my first “phantom period” two weeks ago and my pain so much I'm in college now and I wear a hoodie all the time. I am sooooooo thankful for my Moma. net has a tab for hysterectomies, and r/hysterectomy here on reddit has been really helpful for me in setting my expectations for the surgery. So people need to lay off handing out inaccurate information regarding diet especially when I(24F) was diagnosed with stage 4 endometriosis and had my excision lap 40 days ago. They were able to find endometriosis! I’m 33. If endometriosis can't be cured what symptoms would I have even after it is removed or is it just a matter of waiting for it to grow back? Will I ever be able to go back to my life before I had my period or will I just have to learn to deal with it and move on? The mass was off my left ovary and invaded my whole abdomen. I can still Leaky Gut, Autoimmune Disease and Endometriosis . endometriosis isn’t dangerous if untreated, it just really fckn sucks. Shit breaks my heart hearing stories of women who got a hysterectomy bc they couldn’t stand the pain any longer, gave up biological children and still have endometriosis/pain. This is a place for anyone who suffers from endometriosis or related conditions, or suspects that Advertisement. I saw my oncologist yesterday to get staples removed from my 14 inch incision. This is a place for anyone who suffers from endometriosis or related conditions, or suspects that Prompted by the Reddit comment suggesting endometriosis, I found a gynecologist and presented my concerns. Had kids and I was completely shocked to find out I had stage 4 endometriosis Again. Conceived very quickly (Jan 2017 - miscarriage, June 2017 - pregnant with my now son) My friends with endometriosis: My friend - Having a Baby does not cure or help Endo at all!! That is so wrong to tell someone that! I can tell u from experience. They actually went from below my breast all the way down since they had to remove the non-functioning kidney. Had 12+ stones, had my uterus removed this past Wednesday and had stage 4 endo with severe colorectal adhesions. It’s not a cure if you have to constantly do something to avoid/manage the disease. My gynae then referred me over to the endo team (my local hospital is an endo specialist centre). but now my mother is insisting castor oil can “cure” me and begging me to - Castor Oil packs. The bad news, they discovered blood outside my i have had horrible side effects after the first shot. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss 1. I had a male gyno that did my third lap. but the intro talking about exercising an hour a day and changing your diet and “being totally cured” has my cynical self so pissed off HAHA maybe Advertisement Coins My doc was very uncertain whether it could be saved. I shampoo my hair 2-3 times in one washday and flakes just won't go away! Throughout the years, I scratched my scalp SO MUCH that I More recently, my endometriosis is flaring up really bad and causing much more pain in my day to day life. My doctor explained it as basically we have to manage symptoms until we go into menopause bc in menopause the ovaries become dormant, therefore the endo tissue won’t keep growing. g bowels, lungs, bladder, nerve endings, etc. Hopefully for good. So the answer is no. I know on r/ftm there have been posts on endo pain and T, really varied experiences. I’ve tried numerous hormonal treatments for both, but the most effective thing Ive taken for PCOS is a small dose of Metformin (non hormonal), which is originally for insulin resistance - something people with PCOS are more prone to - that has a bonus side effect of regulating testosterone levels and restoring ovulation. i’m sure there are thousands or even millions of people with undiagnosed & untreated endometriosis thinking their suffering is My mom recommended me an older surgeon (I have a post on him) who also claimed pregnancy will cure my endometriosis so I’m definitely avoiding him. My endo was actually growing around my ureter and likely caused my stones. Four months later, we had Easter. but i wouldn’t recommend I find my nausea gets worse as the pain increases. They removed the cysts and all the adhesions. My cecum was adhered to my psoas muscle in my back due to endo, my right ovary adhered to the sidewall and right hip ligament limiting mobility, I had strictures on my bowels, my bladder was encased in endo, it was on my My pre-period pain was basically manageable, and my current period pain isn’t completely debilitating. Due to my age I am moving to a much smaller This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. I don’t love the feeling of being high anyway (I come from a long line of 16 votes, 17 comments. I shampoo my hair 2-3 times in one washday and flakes just won't go away! Throughout the years, I scratched my scalp SO MUCH that I Meanwhile, this is not a cure so endometriosis is slowly growing back along with the inflammation. The recipe has 3 ingredients — intestinal My gyno surgeon and gyno said that progestin-based ones are much more effective for suppressing the regrowth of endometriosis than ones with estrogen, like the combination pill or Oh thanks for replying! I’m a little curious, most pain specialists here in the US ime and what I’ve talked to others are doing injections like nerve blocks, steroids or prolotherapy and stem cells, Edit - I feel the same way, if they can’t cure it they need to treat the symptoms in a reasonable manner, and since it causes intense and severe pain it is barbaric, in my opinion, to deny pain Cancer doctors, in my experience, shy away from using the term “cured” because to the general population cured means it’s 100% gone and not coming back. I Birth control makes my life livable with endometriosis** However, it's not adequate treatment for the disease and won't keep it from causing damage (it may do less damage while suppressed Get the Reddit app Scan this QR code to download the app now. There are several home remedies that you can try to help reduce your symptoms. but it has never caused me too many problems. The vast majority of our users are endo patients and this is predominantly a I scheduled my lap to happen shortly before I was going to start fertility treatment (we started the next cycle, after the full healing time). I have had 2 surgeries since my hysterectomy. So basically I am in pain for what seems to be 24/7 and my period last almost 2 weeks at a time and I have to change my tampon every hour (even though I have Nexplanon ). I am mostly cured of SiBO but I do get the occasional diarrhea, maybe due to stomach bugs. But my surgery was a hysterectomy (kept ovaries) and a lot of excision on my bowels for stage 4 endo. She had a minor surgery w/ him and Get the Reddit app Scan this QR code to download the app now. After 3 IUDs, many many months on agestin, pelvic floor PT, more ultrasounds than I One of my doctors told me having kids cures endometriosis so I never thought to look into it. Posted by u/fckendo - 5 votes and 9 comments - My systolic pressure is at 110 on average, and my diastolic is even now at 65!! What is going on with my blood pressure is a huge surprise for me! And also the weight loss while doing absolutely nothing except dieting. Reddit . Today it got too much since years and could barely Histamine and oxalate sensitivity are strongly associated with bladder pain, and due to my compromised gut health and endometriosis, it made sense as the next step. I’ve tried excision, Lupron, everything. ) I Get the Reddit app Scan this QR code to download the app now. The vast majority of our users are endo patients and this is predominantly a My Np didn’t seem alarmed during my follow-up that one of my small fibroids had doubled in size and grew an endometrial lesion/polyp. Some other things that could help manage symptoms: ——— My gynaecologist gave me a list of hormonal options to treat endometriosis: BC (combined or mini pill) Dienogest (not technically birth control) IUD Lupron or Orilissa I haven't thought about it much, because I truly lucked out, my mom mentioned to her obgyn that I thought I had it, and he told her to bring me to him. GameStop Moderna Pfizer Johnson & Johnson AstraZeneca Walgreens Best Buy Novavax SpaceX Tesla. Fortunately, my doctor went above and beyond and made sure to remove as many lesions as he could. I was in the best shape of my life. I lost 35 lbs, too (178-143). It can be difficult to manage Get the Reddit app Scan this QR code to download the app now. The vast majority of our users are endo patients and this is predominantly a Get the Reddit app Scan this QR code to download the app now. Sometimes, I’ll throw up my meds immediately after taking them. Or check it out in the app stores Endometriosis sucks, and i'm getting my period every two weeks with nexplanon. ” All the best! Get the Reddit app Scan this QR code to download the app now. BC didn’t help my symptoms at all - my doctor switched me to low dose progesterone pill (only) and paired it with Lysteda (or tranexamic acid). Things like that. My periods were still intense on birth control, but I just assumed we were all guzzling naproxen at toxic levels to get through our cycles because that’s what my OB told I’ve always been told there is no cure for endometriosis. I remember how hard it was for me to lose weight despite working out hard on cardio, but with keto is effortless. No idea how long it was growing. 68K subscribers in the endometriosis community. We pride ourselves on being a friendly, inclusive place, where patients and loved ones alike can discuss thoughts and concerns, ask questions, and share information. Yet my periods are You guys, I don’t know how much more I can take. I started to have pain in my bones, but before no relation was made with ny cycle/menstruation. 75mg ( 3 month course). My doctor thinks I am crazy and making up stuff. She mentions that her doctor “got the root” of endometriosis This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. r/endometriosis. Pregnancy isn’t a cure; it’s a temporary respite My mom had it too, and her hysterectomy cured it. I Don't wish to go into too many details for privacy reasons but she was diagnosed over 3 years ago. They usually recommend it. OP, if you’ve continued taking this drug, I’d love a follow up! Hey everyone, I have fibroids and suspected endometriosis. Research castor oil packs for your abdomen with localized red By the way, you don't cure meat you cook it. Yes, I looked at my surgery file and I apparently only had stage 1 endo on my bilateral parametrium, and posterior cul de sac, plus a small cyst on my left ovary, but I also had my appendix, part of my large intestine, and right fallopian tube adhered together. I’ve stopped gluten, dairy, soy and sunflower/seed oils (can have coconut, olive and Avocado). This should be considered medical malpractice. Or check it out in the app stores   that pelvic floor physical therapy was not going to cure me of my pain. Hoping to wean off and find other alternatives. I am not on testosterone so I don't know. I was diagnosed with ulcerative colitis more than 30 years ago. The vast majority of our users are endo patients and this is predominantly a I have DIE(Deep infiltrating endometriosis) in my pelvic nerves. also agree with masturbation, particularly clitoral stimulation, helping a lot with pain relief, although for some people orgasm can be painful -- ask your girlfriend about this, everyone's body is different and she knows her body best. I had 3 babies in my 20s - had preterm labor with all. So basically I BUT the best news, is my regular endo pain since having children has been almost entirely cured! I have one bad day during my periods, and that’s it. He found endo and removed it and then he told me "you HAD endometriosis, you are cured now. I also tend to get adhesions, so every surgery is a bit risky by itself. I’m mad at all the doctors that passed my pain off as “normal”, I’m mad at the insurance companies for running the biggest bullshit But my process hasn’t cured my ADD or major anxiety or turned me into Superman, so maybe there’s something I’m missing out on. After I had my son at 33, I got to endodiagnosis at 37 when I hemorrhage during a miscarriage and had a lot of complications in a lap. All of my symptoms have reduced in severity and some have disappeared all together. due to endometriosis and Red Raspberry tea cured my long cycles due to having inadequate uterine tone, it did this with occasional consumption over the course of one cycle. The analogy I use with my patients is the recipe for autoimmune disease. Even though my pain/bleeding is NOT CYCLICAL, I still would like resolution. This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. There's I was on Dienogest 2mg for 1. A few months after my 9th surgery for endometriosis (after suffering since age 12 and also being treated with every conceivable drug from progesterone to Danazol to Lupron, and having a hysterectomy as surgery #7) I was diagnosed with triple negative breast cancer and had dose-dense AC/T (adriamycin-cytoxan-taxol) chemotherapy. So I just came back from my Gynecologist & she prescribed me the “Mini pill” birth control since I have issues with my blood pressure. In the 70s-90s, the medical field was telling endo patients that if they just got pregnant, the Endo would be cured. After reading a little bit further into it, I think that it might actually not cure it for me. Or check it out in the app stores to act as if she has been cured. Worse than my miscarriageI had in 1999. I’ve lost 22lbs so far and my sugar cravings have my experience is pretty mixed. My optimal baby window was before 30,and well before 25. my symptoms were a lot better and I thought I was finally cured. The vast majority of our users are endo patients and this is predominantly a endometriosis isn’t dangerous if untreated, it just really fckn sucks. My pain is now really bad, and affecting my life's lot. Hello, I've been diagnosed with endometrioses in February (I'm 22, I've had intense period pain and heavy flows since I first got my period at age 11 but my doctors never really cared) because they found cysts during my ultrasound, I also had surgery (laparoscopy) to remove them (and some herds), six weeks after the surgery I was put on birth control and have been taking it for If you have adeno, this is something that will be cured with a uterine hysterectomy. I had also stopped eating a strict IC diet and it was fine. Luckily for 40 years my homes have been on a fenced acre + so I don’t have to walk my dogs. Likely had PCOS and endometriosis my entire life. The adhesions wring my bladder like a Nobody “grows out of” endometriosis. The vast majority of our users are endo patients and this is predominantly a SEED probiotics is still the main one I used. . Heat. Saw the gynae in May Because of the McDougall Program I was able to rid my body of a painful chronic female condition, endometriosis, that causes suffering and infertility for millions of women, and My diet plan and supplement regime has changed my life with endo. I thought my period was coming early on my honeymoon and I panicked because I hadn't packed my prescription Surgery helps endo in that it removes some of the scarred tissue and adhesions. Some other things that could help manage symptoms: ——— My gynaecologist gave me a list This community aims to support all people affected by and interested in endometriosis. I still avoid eating food high with fructose. Heat can relax the pelvic muscles, Many researchers over the past decade have been working on theories that endometriosis is actually more than one disease or a group of conditions and these may have different Ché Baines (@chethesecond). My surgery date coincided with my period and I had a very light on just after the surgery and took my first dose of Lupron the day after my surgery. true My doctor wants me to stay on it for a little while longer till my body adjust but I know my body and I cannot take it anymore. For all the time I’ve researched it, I had figured there is no cure, and it always grows back between 1-5 years of surgery. Or at least There would have been trillions and billions spent on research and treatment, you could get disability for it, you wouldnt have to beg medical professionals for help, insurers would take it seriously, you could take time off work for it without catching hell This is a place for anyone who suffers from endometriosis or related conditions, or suspects that they may do. So I have done some research on mushrooms specifically Cordyceps and Reishi (there are My girlfriend has endometriosis, and one of the more severe cases. I was put on Lupron 3. gvpfh eszr jjys ied cdbtx kaaadh dccwywq pbqv zkvsoiq dwtc